SESSION WATCH
Died SENATE · SESSION 2026

No. SB 1060

Neurofibromatosis Research Grants
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SPONSOR
Rodriguez
FILED BY
Ana Maria Rodriguez — District 40, Republican [search donations]
EFFECTIVE
7/1/2026
DIED IN
Health Policy

Filed under Healthcare.

PROVIDED SUMMARY

Neurofibromatosis Research Grants; Creating the Neurofibromatosis Disease Grant Program within the Department of Health; providing the purpose of the program; allowing certain grant proposals to receive preference in the awarding of grants; requiring the department to award grants after consulting with the Rare Disease Advisory Council; prohibiting members of the council or peer review panels from participating in discussions or decisions if there are certain conflicts of interest, etc.

Full bill text →

Plain English Summary

AI-GENERATED
Creates a $5 million grant program for neurofibromatosis research.

The Department of Health gets a new Neurofibromatosis Disease Grant Program to fund research toward new diagnostics, treatments, and cures, awarding grants through a competitive, peer-reviewed process once the Legislature appropriates $5 million a year.

Any Florida university or established research institute can apply, and every qualified in-state investigator gets equal access to compete, regardless of which institution they work for.

Independent peer review panels score each proposal's scientific merit, and the Department of Health awards grants after consulting the Rare Disease Advisory Council, with proposals that foster collaboration eligible for preference.

Council and panel members must recuse themselves from any proposal tied to an organization where they serve as a governing-body member, employee, or contractor, and unspent grant money already committed by contract can carry over for up to five years.

KEY PROVISIONS
§ 1 Creates the Neurofibromatosis Disease Grant Program at the Department of Health majors. 381.994

AIEstablishes a new program whose purpose is to fund scientific and clinical research toward new diagnostics, treatments, and cures for neurofibromatosis, awarded through a competitive, peer-reviewed process.

“The purpose of the program is to advance the progress of research and cures for neurofibromatosis by awarding grants through a competitive, peer-reviewed process.” bill text, line 35 →
§ 2 Mandatory grant-awarding duty only activates with a $5 million appropriation majors. 381.994

AIThe program's duty to award grants for neurofibromatosis research is expressly conditioned on the Legislature appropriating $5 million annually; the bill itself does not make that appropriation.

“Subject to an annual recurring appropriation of $5 million by the Legislature, the program shall award grants” bill text, line 39 →
§ 3 Bars conflicted council and panel members from proposal decisions majors. 381.994

AIA member of the council or a peer review panel is forbidden from taking part in any discussion or vote on a proposal connected to an organization they are tied to.

“may not participate in any discussion or decision of the council or panel with respect to a research proposal” bill text, line 75 →
§ 4 Guarantees equal competitive access regardless of institutional affiliation moderates. 381.994

AIAny qualified investigator in Florida must be given equal access and opportunity to compete for the research funding, regardless of which university or institute employs them.

“All qualified investigators in this state, regardless of institutional affiliation, shall have equal access and opportunity to compete for the research funding.” bill text, line 45 →
§ 5 Requires independent peer review panels to score every proposal moderates. 381.994

AIThe department must appoint panels of independent, scientifically qualified reviewers to evaluate each grant proposal's scientific merit and assign it a priority score before funding decisions are made.

“the department shall appoint peer review panels of independent, scientifically qualified individuals to review the scientific merit of each proposal” bill text, line 65 →
§ 6 Lets unspent, obligated grant funds carry forward for up to five years moderates. 381.994

AIOverriding the normal single-year reversion rule, money appropriated for the program that is under contract or committed to be spent by June 30 can remain available to the program for years afterward instead of returning to the treasury.

“may be carried forward for up to 5 years after the effective date of the original appropriation” bill text, line 86 →
TIMELINE
3/13/2026
Died in Health Policy
1/13/2026
Introduced
1/12/2026
Referred to Health Policy; Appropriations Committee on Health and...
1/5/2026
Filed
STATUTES IT CHANGES
s. 381.994
+461 / −0