No. CS/HB 1445
Filed under Education.
Pub. Rec./Parkinson's Disease Registry; Provides public records exemption for specified patient information for Parkinson's disease registry; authorizes certain information to be disclosed under certain circumstances; provides for future legislative review & repeal of exemption; provides statement of public necessity.
Plain English Summary
AI-GENERATEDPatient names in the Parkinson's disease registry are now confidential and exempt from public records laws.
The Parkinson's Disease Research Board and contracted private entities may access this identifying information under strict conditions.
Private entities must submit a research plan, maintain confidentiality, destroy records after research, and never contact patients.
The exemption automatically expires on October 2, 2031, unless the Legislature reviews and reenacts it.
AIMakes patient-identifying data in the Parkinson's disease registry confidential and exempt from public records disclosure.
AIPermits disclosure of confidential registry information to the Parkinson's Disease Research Board.
AIAllows disclosure to private entities contracted by the board, provided they submit a research plan, maintain confidentiality, destroy records after research, and do not contact patients.
AIRepeals the confidentiality exemption on October 2, 2031, unless the Legislature reviews and reenacts it.