SESSION WATCH
Died SENATE · SESSION 2026

No. SB 1554

Public Records/Experimental Treatment Outcomes
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SPONSOR
Burgess
FILED BY
Danny Burgess — District 23, Republican [search donations]
EFFECTIVE
On the same date that SB 1552 or similar legislation takes effect, if such legislation is adopted in the same legislative session or an extension thereof and becomes a law
DIED IN
Health Policy

Filed under Healthcare.

PROVIDED SUMMARY

Public Records/Experimental Treatment Outcomes; Providing an exemption from public records requirements for certain information contained in a public report published by the Department of Health relating to experimental treatment outcomes and safety signals; providing a statement of public necessity, etc.

Full bill text →

Plain English Summary

AI-GENERATED
Shields patient health data and drug pricing from public records access.

Makes the health information and proprietary pricing information inside the Department of Health's annual report on experimental treatment outcomes confidential and exempt from Florida's public records law and constitutional right of access.

States that disclosing this information could harm patients with terminal conditions or life-threatening rare diseases by exposing extremely sensitive personal health data, and finds their privacy expectation outweighs any public benefit from release.

Applies to patients who pursue experimental treatments under the Promising Pathways Act, whose outcomes and safety signals the department is separately required to report on in the aggregate each year.

Takes effect only if a companion bill creating or expanding the underlying reporting requirement also passes in the same legislative session and becomes law.

KEY PROVISIONS
§ 1 New public-records exemption for health and pricing data majors. 499.0295

AIHealth information and proprietary pricing information in the Department of Health's annual experimental-treatment-outcomes report is shielded from disclosure under Florida's public records law and the state constitution's right-of-access provision.

“The health information and proprietary pricing information contained in the report is confidential and exempt from s. 119.07(1)” bill text, line 20 →
§ 2 Exemption contingent on a companion bill passing majors. 499.0295

AIThe exemption does not take effect on its own; it is written to activate only if a companion bill creating or expanding the underlying reporting requirement also passes in the same legislative session and becomes law.

“if such legislation is adopted in the same legislative session or an extension thereof and becomes a law” bill text, line 40 →
TIMELINE
3/13/2026
Died in Health Policy
1/22/2026
Introduced
1/16/2026
Referred to Health Policy; Appropriations Committee on Health and...
1/9/2026
Filed
STATUTES IT CHANGES
s. 499.0295
+27 / −0