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THE BILL ITSELF

CS/SB 1684

Parkinson’s Disease Registry

VERSION S 1684 c1 · BACK TO THE SUMMARY · OFFICIAL RECORD

underlined language is being added; struck language is being deleted. Line numbers are the Legislature's own — the same ones amendments cite.

Florida Senate - 2026 CS for SB 1684 By the Appropriations Committee on Health and Human Services; and Senator Calatayud 603-02961-26 20261684c1
1 A bill to be entitled
2 An act relating to the Parkinson’s disease registry;
3 creating ss. 458.352, 459.075, and 464.0124, F.S.;
4 requiring physicians, osteopathic physicians, and
5 advanced practice registered nurses, respectively, to
6 report certain information to the Parkinson’s disease
7 registry; providing limited liability for physicians
8 and advanced practice registered nurses under certain
9 circumstances; amending s. 1004.4352, F.S.; revising
10 the membership of the Parkinson’s Disease Research
11 Board; requiring that annual reports of the board
12 include specified information beginning on a specified
13 date; requiring the Institute for Parkinson’s Disease
14 at the University of South Florida, subject to
15 appropriation, to establish and maintain a statewide
16 Parkinson’s disease registry for specified purposes;
17 providing requirements for the registry; requiring
18 certain physicians and advanced practice registered
19 nurses to report specified information to the registry
20 regularly; requiring the institute, beginning on a
21 specified date, to create and maintain a public
22 website dedicated solely to the registry; specifying
23 requirements for the website; requiring that the
24 website be updated by a specified date and annually
25 thereafter; providing an effective date.
27 Be It Enacted by the Legislature of the State of Florida:
29 Section 1. Section 458.352, Florida Statutes, is created to
30 read:
31 458.352 Parkinson’s disease registry; reporting
32 requirement.—
33 (1) Beginning January 1, 2027, each physician who diagnoses
34 or treats a patient for Parkinson’s disease shall report to the
35 statewide Parkinson’s disease registry, established pursuant to
36 s. 1004.4352, information containing nationally recognized
37 Parkinson’s disease performance measures.
38 (2) A liability of any kind or character for damages or
39 other relief may not arise or be enforced against a physician by
40 reason of having provided such information to the statewide
41 Parkinson’s disease registry.
42 Section 2. Section 459.075, Florida Statutes, is created to
43 read:
44 459.075 Parkinson’s disease registry; reporting
45 requirement.—
46 (1) Beginning January 1, 2027, each physician who diagnoses
47 or treats a patient for Parkinson’s disease shall report to the
48 statewide Parkinson’s disease registry, established pursuant to
49 s. 1004.4352, information containing nationally recognized
50 Parkinson’s disease performance measures.
51 (2) A liability of any kind or character for damages or
52 other relief may not arise or be enforced against a physician by
53 reason of having provided such information to the statewide
54 Parkinson’s disease registry.
55 Section 3. Section 464.0124, Florida Statutes, is created
56 to read:
57 464.0124 Parkinson’s disease registry; advanced practice
58 registered nurse reporting requirement.—
59 (1) Beginning January 1, 2027, each advanced practice
60 registered nurse who diagnoses or treats a patient for
61 Parkinson’s disease shall report to the statewide Parkinson’s
62 disease registry, established pursuant to s. 1004.4352,
63 information containing nationally recognized Parkinson’s disease
64 performance measures.
65 (2) A liability of any kind or character for damages or
66 other relief may not arise or be enforced against an advanced
67 practice registered nurse by reason of having provided such
68 information to the statewide Parkinson’s disease registry.
69 Section 4. Paragraphs (b) and (e) of subsection (4) of
70 section 1004.4352, Florida Statutes, are amended, and subsection
71 (5) is added to that section, to read:
72 1004.4352 Parkinson’s disease research.—
73 (4) CONSORTIUM FOR PARKINSON’S DISEASE RESEARCH.—
74 (b) The Parkinson’s Disease Research Board is established
75 to direct the operations of the consortium. The board shall be
76 composed of one member appointed by the President of the Senate,
77 one member appointed by the Speaker of the House of
78 Representatives, and members representing each participating
79 university or academic medical center, appointed by the
80 president or chief executive officer of each participating
81 university or academic medical center. Board members , other than
82 those appointed by the President of the Senate or the Speaker of
83 the House of Representatives, must have experience as a movement
84 disorder specialist and in informatics or population health
85 research and Parkinson’s disease research in a variety of
86 scientific fields, including, but not limited to, neurology,
87 psychology, nutrition, and genetics . Members shall be appointed
88 to 3-year 4-year terms and may be reappointed to serve
89 additional terms. The chair shall be elected by the board from
90 among its members to serve a 2-year term. The board shall meet
91 at least semiannually at the call of the chair or, in his or her
92 absence or incapacity, the vice chair. Four members constitute a
93 quorum. A majority vote of the members present is required for
94 all actions of the board. The board may prescribe, amend, and
95 repeal a charter governing the manner in which it conducts its
96 business. Board members shall serve without compensation, but
97 are entitled to receive reimbursement for travel expenses by the
98 consortium or the organization he or she represents in
99 accordance with s. 112.061.
100 (e) By October 15 of each year, the board shall issue a
101 report to the Governor, the President of the Senate, and the
102 Speaker of the House of Representatives on research projects,
103 research findings, and community outreach initiatives conducted
104 or funded by , and future plans for the consortium. Beginning on
105 October 15, 2028, and annually thereafter, the report must
106 include a summary update on the incidence and prevalence of
107 Parkinson’s disease in this state by county, how many records
108 have been included and reported to the registry, and demographic
109 information, such as patients by age, gender, and race.
110 (5) PARKINSON’S DISEASE REGISTRY.—
111 (a) Subject to a specific appropriation, the Florida
112 Institute for Parkinson’s Disease at the University of South
113 Florida shall establish and maintain a statewide Parkinson’s
114 disease registry to ensure that the Parkinson’s disease
115 performance measures required to be submitted under paragraph
116 (b) are maintained and available for use to improve or modify
117 the Parkinson’s disease care system, ensure compliance with
118 standards and nationally recognized guidelines, and monitor
119 Parkinson’s disease patient outcomes.
120 (b) Physicians licensed under chapter 458 or chapter 459,
121 pursuant to ss. 458.352 and 459.075, and advanced practice
122 registered nurses licensed under chapter 464, pursuant to s.
123 464.0124, shall regularly report to the statewide Parkinson’s
124 disease registry information containing nationally recognized
125 Parkinson’s disease performance measures.
126 (c) Beginning January 1, 2028, the Institute for
127 Parkinson’s Disease at the University of South Florida shall
128 create and maintain a public website dedicated solely to the
129 Parkinson’s disease registry which must include, at a minimum,
130 downloadable annual reports on the incidence and prevalence of
131 Parkinson’s disease, information on the consortium, and other
132 information as determined by the board. The website must be
133 updated by January 1, 2029, and annually thereafter.
134 Section 5. This act shall take effect July 1, 2026.