SESSION WATCH
Died HOUSE · SESSION 2026

No. CS/HB 497

Neurofibromatosis Research Grants
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SPONSOR
Health Professions & Programs Subcommittee; Gonzalez Pittman
FILED BY
Karen Gonzalez Pittman — District 65, Republican [search donations]
EFFECTIVE
7/1/2026
DIED IN
Health & Human Services Committee

Filed under Healthcare.

PROVIDED SUMMARY

Neurofibromatosis Research Grants; Creates Neurofibromatosis Disease Grant Program within DOH; provides purpose program; requires, subject to appropriation, program to award certain grants; provides requirements for grant applications; requires Rare Disease Advisory Council & peer review panels to establish & follow specified guidelines; prohibits members of council & panels from participating in certain discussions & decisions; authorizes certain appropriation funds to be carried forward.

Full bill text →

Plain English Summary

AI-GENERATED
Creates a state grant program funding neurofibromatosis research through competitive review.

The Department of Health gets a new grant program funding neurofibromatosis research and cures. Any Florida university or established research institute can apply, and all qualified investigators compete on equal footing regardless of where they work.

Nothing is guaranteed, though: the program only awards grants if the Legislature separately appropriates the money. Independent peer reviewers score each proposal on scientific merit before the department decides who gets funded.

Council and review-panel members are barred from weighing in on any proposal tied to a firm or agency they work for, sit on the board of, or have a contract with, guarding against conflicts of interest.

Money the program has already committed to a grant contract, but hasn't yet paid out, can roll over for up to five years instead of reverting to the state's general fund at year's end.

KEY PROVISIONS
§ 1 Creates the Neurofibromatosis Disease Grant Program at DOH majors. 381.994(1)(a)

AIA new grant program is established inside the Department of Health with the specific purpose of funding research and cures for neurofibromatosis through a competitive, peer-reviewed process.

“The purpose of the program is to advance the progress of research and cures for neurofibromatosis by awarding grants through a competitive, peer-reviewed process” bill text, line 23 →
§ 2 Guarantees equal access to funding regardless of institution majors. 381.994(2)(a)

AIAny university or established research institute in the state may apply, and every qualified investigator gets the same access and opportunity to compete for the money regardless of which institution they are affiliated with.

“All qualified investigators in the state, regardless of institutional affiliation, shall have equal access and opportunity to compete for the research funding” bill text, line 33 →
§ 3 Bars council and panel members from proposals tied to their own affiliations majors. 381.994(3)

AIA member of the Rare Disease Advisory Council or a peer review panel may not take part in discussing or deciding any research proposal from a firm, entity, or agency they are associated with as a board member, employee, or contractor.

“A member of the council or panel may not participate in any discussion or decision of the council or panel” bill text, line 62 →
§ 4 Grants only flow if the Legislature separately appropriates funds moderates. 381.994(1)(b)

AIThe program does not come with its own funding. It can only award grants for scientific and clinical research if the Legislature separately appropriates money for it in the budget.

“Subject to legislative appropriation, the program shall award grants for scientific and clinical research” bill text, line 27 →
§ 5 Requires independent peer review of every proposal moderates. 381.994(2)(b)

AIThe department must appoint panels of independent, scientifically qualified reviewers, separate from department staff, to score the scientific merit of each grant proposal before funding decisions are made.

“the department shall appoint peer review panels of independent, scientifically qualified individuals to review the scientific merit of each proposal” bill text, line 53 →
§ 6 Lets unspent, committed grant money carry forward up to 5 years moderates. 381.994(4)

AIAppropriated funds that are already obligated by contract or committed to be spent by June 30 do not have to revert to general revenue at fiscal year end; they can carry forward for up to five years.

“may be carried forward for up to 5 years after the effective date of the original appropriation” bill text, line 73 →
TIMELINE
3/13/2026
Died in Health & Human Services Committee
2/12/2026
Now in Health & Human Services Committee
2/12/2026
Referred to Health & Human Services Committee
2/11/2026
1st Reading (Committee Substitute 1)
2/11/2026
CS Filed
2/11/2026
Laid on Table under Rule 7.18(a)
2/11/2026
Reported out of Health Professions & Programs Subcommittee
2/11/2026
Favorable with CS by Health Professions & Programs Subcommittee
2/9/2026
Added to Health Professions & Programs Subcommittee agenda
1/13/2026
1st Reading (Original Filed Version)
11/24/2025
Now in Health Professions & Programs Subcommittee
11/24/2025
Referred to Health & Human Services Committee
11/24/2025
Referred to Health Care Budget Subcommittee
11/24/2025
Referred to Health Professions & Programs Subcommittee
11/19/2025
Filed
9 EARLIER →
STATUTES IT CHANGES
s. 381.994
+446 / −0
STAFF ANALYSES