THE BILL ITSELF
HR 8037
Wolf-Hirschhorn/4p- Syndrome Awareness Day
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House Resolution
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A resolution designating April 16, 2026, as "Wolf-
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Hirschhorn/4p-Syndrome Awareness Day" in Florida.
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WHEREAS, the health and well-being of all Floridians
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contributes greatly to the prosperity and livelihood of our
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state's families and communities, and
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WHEREAS, Wolf-Hirschhorn syndrome, also known as 4p-
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syndrome, is a genetic disorder caused by a partial deletion of
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the short arm of chromosome 4, and
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WHEREAS, children with 4p-syndrome are usually born with
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weak muscle tone and develop slowly, both cognitively and
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physically, compared to their same-age peers, and experience
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medical complications while still trying to maintain a normal
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childhood, and
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WHEREAS, medical professionals are researching this rare
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disease, its misdiagnosis, and the exploration of new therapies
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and diagnostic tools to help individuals with 4p-syndrome and
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their families, and
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WHEREAS, 4p-syndrome affects an estimated one in 50,000
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births, which may be underestimated because some cases are
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undiagnosed, and
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WHEREAS, effective diagnostic screenings, early
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intervention, treatments, and families and advocates can
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increase knowledge and awareness of 4p-syndrome, and
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WHEREAS, doctors in Florida continue to diagnose, study,
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and provide treatment for specific symptoms of Wolf-
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Hirschhorn/4p-syndrome, NOW, THEREFORE,
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Be It Resolved by the House of Representatives of the State of
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Florida:
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That April 16, 2026, is designated as "Wolf-Hirschhorn/4p-
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Syndrome Awareness Day" in Florida.