THE BILL ITSELF
HR 8057
Tay-Sachs Disease Awareness Day
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House Resolution
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A resolution designating August 10, 2026, as "Tay-
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Sachs Disease Awareness Day" in Florida.
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WHEREAS, Tay-Sachs disease is a genetic disorder caused by
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the absence of beta-hexosaminidase A (Hex A), which causes cells
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to become damaged, resulting in progressive neurological
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disorders, and
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WHEREAS, infants with Tay-Sachs disease often fail to
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achieve milestones such as rolling over and sitting up, and
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develop muscle weakness, which gradually leads to paralysis, and
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WHEREAS, these infants also lose mental functions and
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become increasingly unresponsive to their surroundings, in some
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cases developing blindness, seizures, and difficulty swallowing
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by 12 months of age, and
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WHEREAS, children with Tay-Sachs disease often die by 4
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years of age, and
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WHEREAS, the carrier rate of Tay-Sachs disease for the
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general population is 1 in 250 people, and a child has a 25
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percent chance of having the disease when both parents are
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carriers, and
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WHEREAS, there is currently no treatment or cure for Tay-
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Sachs disease, rather only ways to manage symptoms, and
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WHEREAS, increasing awareness and education of Tay-Sachs
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disease may lead to significant progress in the research to
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determine the cause of the gene mutation that results in the
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disease, and eventually a cure, NOW, THEREFORE,
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Be It Resolved by the House of Representatives of the State of
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Florida:
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That August 10, 2026, is designated as "Tay-Sachs Disease
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Awareness Day" in Florida.