THE BILL ITSELF
HB 1385
Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
1
A bill to be entitled
2
An act relating to trust funds; creating s. 499.02955,
3
F.S.; creating the Experimental Treatment Access Trust
4
Fund for specified purposes; authorizing licensed
5
experimental treatment centers to contribute a
6
specified amount to the trust fund or provide
7
specified care at no cost; providing for termination
8
of the trust fund; providing a contingent effective
9
date.
11
Be It Enacted by the Legislature of the State of Florida:
13
Section 1. Section 499.02955, Florida Statutes, is created
14
to read:
15
499.02955 Experimental Treatment Access Trust Fund.—
16
(1) There is created in the State Treasury the
17
Experimental Treatment Access Trust Fund within the Department
18
of Health, from which the Legislature may appropriate funds for
19
the purpose of assisting eligible patients who are residents of
20
this state with costs associated with travel to receive
21
experimental treatment or partial care costs under this section.
22
(2) Each licensed experimental treatment center may
23
contribute 2 percent of net annual profits from experimental
24
treatments to the Experimental Treatment Access Trust Fund, or
25
may provide at no cost experimental treatment care in an
26
equivalent amount as adopted by rule by the department.
27
(3) In accordance with s. 19(f)(2), Art. III of the State
28
Constitution, the Experimental Treatment Access Trust Fund
29
shall, unless terminated sooner, be terminated on July 1, 2030.
30
Before its termination, the trust fund shall be reviewed as
31
provided in s. 215.3206(1).
32
Section 2. This act shall take effect July 1, 2026, but
33
only if HB 1381 or similar legislation is adopted in the same
34
legislative session or an extension thereof and becomes a law.