SESSION WATCH
Died HOUSE · SESSION 2026

No. HB 1385

Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
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SPONSOR
Franklin
FILED BY
Gallop Franklin — District 8, Democrat [search donations]
EFFECTIVE
July 1, 2026, but only if HB 1381 or similar legislation is adopted in the same legislative session
DIED IN
Health Professions & Programs Subcommittee

Filed under Healthcare.

PROVIDED SUMMARY

Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Creates Experimental Treatment Access Trust Fund for specified purposes; authorizes licensed experimental treatment centers to contribute specified amount to trust fund or provide specified care at no cost; provides for termination of trust fund.

Full bill text →

Plain English Summary

AI-GENERATED
Creates a trust fund helping patients afford experimental treatment travel costs.

A new Experimental Treatment Access Trust Fund would help Florida residents with the cost of traveling for experimental treatment, or with part of the treatment's cost, but only if the Legislature chooses to put money into it.

Licensed experimental treatment centers can voluntarily give 2 percent of their profits to the fund, or instead give free treatment of about the same value. Nothing requires them to contribute at all.

The fund is built to expire on July 1, 2030, unless lawmakers end it sooner or extend it, and must be formally reviewed before that shutdown date.

None of this becomes law on its own: the whole act only takes effect if a separate bill, HB 1381 or similar legislation, also passes this session and is signed into law.

KEY PROVISIONS
§ 1 Creates the Experimental Treatment Access Trust Fund majors. 499.02955(1)

AIA new trust fund is created within the Department of Health so the Legislature can appropriate money to help Florida-resident patients cover travel costs to get experimental treatment, or part of the treatment's cost.

“the Legislature may appropriate funds for the purpose of assisting eligible patients who are residents of this state with costs associated with travel” bill text, line 18 →
§ 2 Treatment centers may voluntarily fund it with profits or free care majors. 499.02955(2)

AIA licensed experimental treatment center is not required to contribute anything, but it may choose to give 2 percent of its net annual profits to the fund, or provide free experimental treatment care of an equivalent value instead.

“Each licensed experimental treatment center may contribute 2 percent of net annual profits from experimental treatments to the Experimental Treatment Access Trust Fund” bill text, line 22 →
§ 3 Entire act is contingent on a companion bill also passing majors. 499.02955

AINone of this section takes effect on its own. The whole act is conditioned on HB 1381, or similar legislation, also becoming law in the same legislative session or an extension of it.

“This act shall take effect July 1, 2026, but only if HB 1381 or similar legislation is adopted in the same legislative session” bill text, line 32 →
§ 4 The fund automatically expires in 2030 unless renewed moderates. 499.02955(3)

AIFollowing Florida's standard constitutional rule for trust funds, this one is set to terminate on July 1, 2030, and must be reviewed before then, unless the Legislature acts to keep it going.

“the Experimental Treatment Access Trust Fund shall, unless terminated sooner, be terminated on July 1, 2030” bill text, line 28 →
TIMELINE
3/13/2026
Died in Health Professions & Programs Subcommittee
1/15/2026
Now in Health Professions & Programs Subcommittee
1/15/2026
Referred to Health & Human Services Committee
1/15/2026
Referred to Health Care Budget Subcommittee
1/15/2026
Referred to Health Professions & Programs Subcommittee
1/13/2026
1st Reading (Original Filed Version)
1/9/2026
Filed
1 EARLIER →
STATUTES IT CHANGES
s. 499.02955
+147 / −0