PROVIDED SUMMARY
Public Records/Parkinson’s Disease Registry; Providing an exemption from public records requirements for certain records and personal identifying information submitted to the Parkinson’s Disease Registry; providing for future legislative review and repeal; providing a statement of public necessity, etc.
Full bill text →
Plain English Summary
AI-GENERATED
Exempts Parkinson's registry records from public disclosure.
Parkinson's disease registry records and personal identifying information become confidential and exempt from public records laws.
The Department of Health may share data with other government agencies for medical or scientific research.
The Department or consortium may contact individuals for epidemiological investigation and monitoring.
The exemption automatically repeals on October 2, 2031, unless the Legislature reenacts it.
KEY PROVISIONS
AIMakes all records and personal identifying information submitted to the Parkinson's Disease Registry confidential and exempt from public records laws.
“All records and personal identifying information relating to persons diagnosed with or treated for Parkinson's disease which is submitted to the registry under this subsection are”
bill text, line 26 →
AIPermits release of confidential registry information with written consent, for epidemiological investigation, or via data-sharing agreements for research, provided no further disclosure occurs.
“Release may be made with the written consent of persons to whom the information applies.”
bill text, line 31 →
AIRequires the confidentiality exemption to be reviewed and reenacted by the Legislature by October 2, 2031, or it automatically repeals.
“shall stand repealed on October 2, 2031, unless reviewed and saved from repeal through reenactment by the Legislature.”
bill text, line 44 →
§ 4
Public Necessity Finding
moderates. 2
AIDeclares it a public necessity to exempt registry records from public disclosure to comply with federal patient privacy laws and protect patient privacy.
“The Legislature finds that it is a public necessity that all records and personal identifying information relating to persons diagnosed with or treated for Parkinson's disease”
bill text, line 47 →
TIMELINE
3/6/2026
Laid on Table, companion bill(s) passed, see CS/HB 1445 (Ch....
3/6/2026
Substituted CS/HB 1445 -SJ 636
3/6/2026
Read 2nd time -SJ 636
3/3/2026
Placed on Special Order Calendar, 03/06/26
2/24/2026
Placed on Calendar, on 2nd reading
2/24/2026
Favorable by- Fiscal Policy; YEAS 18 NAYS 0
2/19/2026
On Committee agenda-- Fiscal Policy, 02/24/26, 9:00 am, 412 Knott Building
2/18/2026
CS by Health Policy read 1st time
2/18/2026
Now in Fiscal Policy
2/18/2026
Favorable by Appropriations Committee on Health and Human...
2/13/2026
On Committee agenda-- Appropriations Committee on Health and Human...
2/12/2026
Now in Appropriations Committee on Health and Human Services
2/12/2026
Pending reference review under Rule 4.7(2) - (Committee Substitute)
2/11/2026
CS by Health Policy; YEAS 11 NAYS 0
2/6/2026
On Committee agenda-- Health Policy, 02/11/26, 3:00 pm, 412 Knott Building
1/16/2026
Referred to Health Policy; Appropriations Committee on Health and...
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STATUTES IT CHANGES
STAFF ANALYSES
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